We just helped another family today at the Nikolas Foundation. Here is the story from Mom’s view that she shared.
“We were excited to find out that we were about the become the parents and were blessed with identical twins.
After passing the critical first trimester we informed our families of the unexpected news.
On our visit to the Doctor’s office at 22 weeks (three and a half months premature), we got a shock with the Doctor telling us we were going into labor, and had to get to the hospital quickly.
Two days later our twin boys came into our world. Born 9/19/19 Henry was 12 ounces and 9.5 inches long and Hendrix was 16.2 ounces and 10.6 inches long.
Henry was unable to take a breathe and passed away 2 hours later.
Hendrix fought hard to stick around and was admitted to the NICU shortly after birth. He was so tiny and fragile… the team at the hospital he was born in help keep Hendrix comfortable and stable for 1 week until his intestine perforated and he was life flighted to Primary Children’s Hospital.
Hendrix has since undergone two surgeries, is scheduled for a third and is fighting for his life every minute of every day.
He is extremely ill but still shows his family and the nurses that he hears us and loves us. He has some cute quirks and quickly steals everyone’s heart.”
His prognosis is guarded as he struggles with adrenal insufficiency, bowel perforation, acute kidney injury and hypotension. At this stage there is no real answer how long Hendrix will be in the hospital but the expectations are for at least 3 more months.
Mom applied through the social workers at the hospital asking for help with a number of bills to take the pressure off for a bit. We submitted the application to our review committee and it was approved quickly. We were able to pay the car payment, mortgage on the house, electric bill and natural gas bill for the month of November. That is almost $1700 in bills the family will not have to worry about and allow them a short reprieve to focus on their surviving twin.
As always, thanks to our donors for their continued support and allowing us the trust to pursue the Nikolas Foundation’s Mission.
As we approach the end of the year, we will be publishing a report to let all those interested how much we have raised and how much we have spent on families. Our fundraising efforts for this great cause continues.